Freddie's Allergies update.

The last update I did on Freddie and his allergies was about six months ago, so thought it was time we did an update!

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After Freddie saw the consultant back in September he was moved from the community dietitian team he had been seeing to the allergy clinic dietitians. We saw the head of the department back in November a few days after Freddie had his birthday. 

When we were there we discussed trying to do a wheat reintroduction starting in the christmas holidays. We had to first try with pasta, and if he didn't like that then try with bread. Freddie decided he did not like pasta anymore so we moved on to bread. He did so well with the quarter slice of bread, that we did the move onto a half a slice. Within a few days of going onto a half slice he obviously had a build up in his body and it started to react with him. 

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He started being very grumpy and getting restless in his sleep again. Then he started waking up in the early hours to poop, which is not like him at all. It was always around three or four in the morning he was waking up and that was him actually up for the day! In fact one night he ended up pooping in his pull up. We then stopped giving him the bread. 

Over the weekend that we stopped it, his sleep started to get a bit better and after a few days his stomach started to settle down. I phoned his dietitian up on the Monday morning and told them what had happened and it was confirmed he had failed the reintroduction.

He now has an appointment on 16th March to discuss the next steps, which will be trying to reintroduce Soya and eventually try again the reintroduce dairy. 

An Update On Freddie's Allergies

Freddie was diagnosed with Non Ige allergies to Dairy, Soya and Wheat back in May and has been under the dietitian team since November 2018. He has been suffering issues since he was around six months old and it took us till he was two and a half to actually see the general paediatrics at our local hospital, who were the ones that referred him to the dietitian team. 

When he went to the hospital allergy clinic back in May, he was actually discharged by the registrar with no plans. When we went to see his new dietitian back in July she was not happy that he had been discharged and decided she wanted him to go back, but this time she wanted him to see the actual consultant. 

So the first week of James being back at school, Freddie's dietitian was going to be at a meeting that the consultant was going to be at and she spoke to her about Freddie. That evening I got a phone call from the dietitian saying the consultant was calling him back in on an urgent appointment. One week later and I got the appointment in the post for the following week. 

The appointment was last Friday afternoon and it went really well. They did all the skin prick tests that he should have had back in May and they all came back negative to the Ige Allergies or to put it into non medical terms  - they came back negative for immediate reactions which we were thrilled with. 

We now know for certain his allergies are the non Ige variety or delayed reaction. Now we are waiting for an appointment with a senior dietitian to start the slow process of trying to reintroduce dairy into his diet. Even if we could get it so he could tolerate milk in cooked food it would be brilliant. 

I will do another update once we have had this appointment and what the process is going to be. At the moment we are only looking to reintroduce milk. I think it will be a long process to add in soya and maybe wheat in the next few years. 

Taking Freddie Dairy Free!

Over the last year, Freddie has had a number of issues which we think are related to his intake of dairy.

Freddie was a brilliant baby, He slept well and had none of the issues with bring up his feeds like James did as a baby, then he hit ten months old and he had a nasty sickness bug and virus. After that his sleep went out the window and became terrible. As he turned one we tried to swap him from baby formula onto cows milk and straight away we had issues. He got constipation and literally didn't sleep at all well. We tried a few times and every time we had the same issues. 

We kept Freddie on formula milk till he was eighteen months old as our GP said and then slowly moved him onto green top milk. We still had major issues with his sleeping, but then we had constipation issues start! We even ended up at local hospital as he hadn't gone for a few days and he was in agony. The doctors prescribed movicol, but even with that there was still days when he didn't go and if he didn't, then he didn't sleep!

Now Freddie is two and lately he has been sicking up his milk, so we made up some milk, which was half milk and half water! Since we started giving this to him, he hasn't needed any movicol at all!! His sleep has also been so much better! 

So now after seeing a different GP who asked if there was any family history with dairy issues (yes there is!), has suggested cutting as much out of his diet as possible which is what we are now trying!

He's getting watered down green top milk in the morning and at night but there rest of the time he is getting water to drink, but we are looking for other drinks to give him and maybe an alternative milk to try! 

Another thing we need to try is new snacks! Freddie loves his fruit covered yogurt bites but since they actually contain dairy we have to stop giving them to him! 

So if anyone has any ideas of snacks we can try that are not too fiddly for me to make or any apps we can try to help us buy him snacks then please email us!